Epilepsy Advocacy
There are many ways to get involved as an epilepsy advocate. Learn how to join the cause and raise awareness about the issues affecting the epilepsy community.
How Can You Become an Epilepsy Advocate?
Through public policy, legal advocacy, and grassroots engagement, you can raise awareness about the issues affecting the epilepsy community and seek positive change. At the Epilepsy Foundation, our advocacy priorities include:
- Ensuring access to quality health care that is affordable, physician-directed, and person-centered
- Ending epilepsy-related discrimination and protecting the rights of people with disabilities
- Raising awareness and promoting education about the epilepsies
- Fostering biomedical innovation by incentivizing the development of new therapies and the promotion of research
Whether you realize it or not, you’re the expert. You know first-hand the challenges that come from living with epilepsy. Without speaking up and telling your story, elected officials may never know what epilepsy is or what issues are important to you. At the Epilepsy Foundation, we can support you with the tools and resources you need to be an effective advocate.
Become an Epilepsy Advocate
We’re actively working to educate lawmakers about epilepsy, but they need to hear from you. There are several ways you can start talking to lawmakers, share your story, and create positive change.
Learn how to take action and become an advocateBecome an Epilepsy Advocacy Champion
Advocacy champions make relationships with policymakers to bring awareness to the challenges of living with epilepsy. They also play a critical role in connecting grassroots advocates in their state.
Learn how to become an Epilepsy Advocacy ChampionJoin Teens Speak Up! & Public Policy Institute
Every other year, we host a conference in Washington, D.C. to bring 175 epilepsy advocates together. Teens with epilepsy can visit the nation's capital to receive advocacy training and talk to lawmakers.
Learn more about the Teens Speak Up! & Public Policy InstituteBecome an Epilepsy Policy Advisory Committee Member
Are you passionate about driving systemic change through advocacy? Our advisory committee provides input and guidance on the Epilepsy Foundation’s advocacy and policy agenda.
Apply to be a committee memberAbout Our Advocacy Priorities
We’re constantly looking at new policies and how they affect the epilepsy community. Through our advocacy work, we’ve identified several priority areas that we focus on.
Learn more about our advocacy prioritiesRelated Resources
‘How a Bill Becomes A Law’ Infographic
Learn how bills are drafted, considered, and enacted in the United States government.
Epilepsy and Seizures 24/7 Helpline
Call 1-800-332-1000 to speak with an information specialist or submit a question online.
Fill Out the Volunteer Interest Form
Get connected and register for the next available volunteer opportunity.
Start a Fundraiser
Every effort and dollar raised makes an impact for the epilepsy community.
