Change Our Epilepsy Story | Epilepsy Foundation

Tell Us Your Story

Stigma can often steer a person toward silence. But what if we changed our story by sharing our experience with epilepsy and overcoming stigma?

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The Epilepsy Foundation offers local assistance, support, and resources.

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Epilepsy and Stigma

Stigma can be the biggest struggle of a person’s epilepsy journey, yet no one is talking about it. Together, we can address the stigma and change our journey.

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How Will You Change Your Epilepsy Story?

People with epilepsy — and their caregivers — often bear the negative attitudes and beliefs surrounding this condition, and they often don’t talk about it as a result. Because no one is talking about epilepsy, the stigma remains. Let’s get everyone to start talking about epilepsy and seizures. Let’s Change Our Epilepsy Story

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Epilepsy Does Not Have Me

“I love my family, but the way they complained about me when they thought I wasn’t listening made me feel awful inside. I felt alone and misunderstood. I was scared and depressed. I felt worthless.”

Sharing Our Stories to Create Awareness

“While I have been fortunate enough to work for managers who know and understand my condition, after 10 years with my [then] employer, I felt I had hit a wall with advancement because of my seizures.”

Facing Epilepsy with My Community

“Living with musicogenic epilepsy (listening to any type of music causes seizures) has led me to withdraw from many things that brought me joy. It is the toughest challenge I’ve faced in life.”

My Journey with Epilepsy

“People were a little scared of me, and they told me that I should quit school. They told me I would not get married, and I would not find a good job. I noticed a change in people’s attitudes toward me.”

Let’s #ChangeOurEpilepsyStory

To create awareness.
To encourage education.
To change the conversion.
To overcome stigma.